Survivor stories highlight the need for early thalassemia diagnosis and treatment

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Young thalassemia survivors with Preetha Reddy, Executive Vice Chairperson of Apollo Hospitals astatine  the lawsuit   to people    World Thalassemia Day successful  Chennai connected  Thursday.

Young thalassemia survivors with Preetha Reddy, Executive Vice Chairperson of Apollo Hospitals astatine the lawsuit to people World Thalassemia Day successful Chennai connected Thursday. | Photo Credit: VELANKANNI RAJ B

Marking World Thalassemia Day 2026, Apollo Cancer Foundation and Apollo Speciality Hospitals, Teynampet, connected Thursday reiterated their committedness to improving entree to Bone Marrow Transplantation (BMT) for children affected by thalassemia, portion celebrating the betterment travel of 30 survivors.

The Foundation said it was supporting entree to life-saving Bone Marrow Transplantation (BMT) procedures for economically weaker children nether the Thalassemia Bal Sewa Yojana (TBSY), implemented successful relation with Coal India Ltd. BMT remains the lone established curative attraction for galore children affected by Thalassemia Major.

Revathi Raj, Senior Consultant, Paediatrics and Haematology Oncology, Apollo Speciality Hospitals, said timely diagnosis and entree to transplantation could assistance children pb healthier and disease-free lives. She stressed the request for greater consciousness and earlier involution to trim dependence connected lifelong humor transfusions.

Thamirabarani, a 25-year-old thalassemia subsister who present works arsenic a teacher, said her parents archetypal noticed wellness complications erstwhile she was one-and-a-half years aged and initially mistook them for jaundice. 

After she was diagnosed with thalassemia, she underwent monthly humor transfusions until the property of 5 and aboriginal had her spleen removed. She said it was lone aft consulting Dr. Raj that she was placed connected the close people of treatment. Dr. Raj besides encouraged her parents to person different child, whose bony marrow was aboriginal utilized for a transplant that helped her recover.

Siddharth, different survivor, said astatine the lawsuit that erstwhile helium underwent attraction successful 2007, his parents faced terrible affectional and fiscal strain arsenic determination was small consciousness astir thalassemia and nary authorities schemes to subsidise attraction costs.

Preetha Reddy, Executive Vice Chairperson of Apollo Hospitals, said caring for children with thalassemia was some a nonrecreational and affectional work and stressed that much enactment and partnerships were needed fixed the ample fig of children requiring treatment. 

Keshika, a 16-year-old survivor, highlighted the value of regular humor donation and the request for capable humor availability. “Every month, we had to marque countless calls conscionable to put a portion of blood. If you are capable to donate blood, delight do. It tin prevention and enactment countless patients similar us,” she said.

Mothers of survivors astatine the lawsuit urged expectant parents to acquisition haemoglobin (Hb) electrophoresis investigating during gestation to assistance place thalassemia aboriginal and forestall complications.

Published - May 15, 2026 12:12 americium IST

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